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List of Publications

We publish all our work.

POPUP: an observational digital study reporting general population norms for the EQ-5D-5-L and HUI-3 in 8 countries.

Archives of Public Health (2025)

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Caregiving burden among caregivers of people with myasthenia gravis.

Orphanet J Rare Dis 20, 311. (2025)​

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A cost analysis of reductions in work productivity for MG patients and their caregivers by symptom severity.

Front Public Health 13:1538789. (2025)

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Post-hoc analyses from the ADAPT clinical study demonstrate aggregate sustained benefit of Efgartigimod in generalized myasthenia gravis.

J Neurol Sci, 466:123264 (2024)

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Psychometric properties of MG-ADL items and MG-ADL score: An assessment of distributional characteristics, validity and factor structure in two large datasets.

J Neurol Sci, 463, Article 123135. (2024)

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The Burden Patients with Myasthenia Gravis Experience in Terms of Breathing, Fatigue, Sleep, Mental Health, Discomfort and Usual Activities in Comparison to the General Population.

Adv Ther (2023). 

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People Diagnosed with Myasthenia Gravis have Lower health-related quality of life and Need More Medical and Caregiver Help in Comparison to the General Population: Analysis of Two Observational Studies.

Adv Ther. 40(10), 4377–4394 (2023)

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Concordance between patient- and physician-reported Myasthenia Gravis Activities of Daily Living (MG-ADL) scores. Muscle & Nerve, 68(1), 65–72. (2023)

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An EQ-5D-Y-3L Value Set for Belgium.

PharmacoEconomics, 40(Suppl 2), 169–180. (2022)

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Exploration of the Reasons Why Health State Valuation Differs for Children Compared With Adults: A Mixed Methods Approach.

Value Health, 25(7):1185-1195. (2022)

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The Effect of Transborder Mobility on COVID-19 Incidences in Belgium. International journal of environmental research and public health,

Int J Environ Res Public Health. 19(16):9968. (2022)

 

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A dashboard for the evaluation of the effect of school closures on wellbeing of children and parents. Arch Public Health

Archives of Public Health 81, 178 (2023)

 


Patient-reported burden of myasthenia gravis: baseline results of the international prospective, observational, longitudinal real-world digital study MyRealWorld-MG.

BMJ open (2023)

 


Patient-reported impact of myasthenia gravis in the real world: protocol for a digital observational study (MyRealWorld MG).

BMJ Open, 11(7) (2021)

 


Exploring the Comparability of Face-to-Face Versus Video Conference-Based Composite Time Trade-Off Interviews: Insights from EQ-5D-Y-3L Valuation Studies in Belgium and Spain.

The Patient-Patient-Centered Outcomes Research, 1-15. (2022)

 


Thrombectomy is a cost-saving procedure up to 24 h after onset.

Acta Neurologica Belgica, 1-9. (2021)

 


Estimating health state utilities in hemophagocytic lymphohistiocytosis. Journal of Patient-Reported Outcomes,

J Patient Rep Outcomes, 5(1), 1-10. (2021)

 


Evaluation of the cost-effectiveness of dexrazoxane for the prevention of anthracycline-related cardiotoxicity in children with sarcoma and haematologic malignancies: a European perspective.

Cost Eff Resour Alloc, 10;18:7. (2020)
 

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The combined impact of dependency on caregivers, disability and coping strategy on quality of life after ischemic stroke.

Health and Quality of Life Outcomes, 17(31). (2019)

 

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The Relationship between home-time, quality of life and costs after ischemic stroke: The impact of the need for mobility aids, home and car modifications on home-time.

Disabil Rehabil., 2:1-7. (2018)

 


Hospital financing of ischaemic stroke: determinants of funding and usefulness of DRG subcategories based on Severity of Illness.

BMC Health Serv Res, 18, 356. (2018)

 


What Impact Does Venous Thromboembolism and Bleeding Have on Cancer Patients' Quality of Life?

Value Health, 21(4):449-455. (2018)

 


Modified Rankin scale as a determinant of direct medical costs after stroke.

Int journal of Stroke, Vol 12, Issue 4 (2017)

 


The impact of cancer-associated thrombosis and treatment related bleedings on patients' quality of life.

Annals of Oncology, Vol 27, Issue suppl_6 (2016)

 


Utilities for treatment-related adverse events in type 2 diabetes.

Journal of Medical Economics, Vol 8 (2015)

 


Analysis of primary and secondary APR-DRG codes of an ischemic stroke admission.

Value Health. 18(7):A400. (2015)

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Investigating the relationship between Severity of Illness and the modified Rankin Scale in ischemic stroke patients with response mapping.

Value Health. 18(7):A405. (2015)

 


Health state utilities in non-small cell lung cancer: An international study.

Asia Pac J Clin Oncol. (2016)

 


Place of residence and employment status after stroke.

Value Health. 17(7):A495. (2014)

 


Quality of Life Decrements after Stroke.

Value Health. 17(7):A331. (2014).

 


Bendamustine-rituximab: a cost-utility analysis in first-line treatment of indolent non-Hodgkin's lymphoma in England and Wales. J Med Econ. 17(2):111-24. (2014).

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Investigating Incoherence Gives Insight: the case of anti-platelet therapy for stroke prevention.

J Clin Epidemiol. 65(8):835-45 (2012)

 


Patient Preferences for First-Line Oral Treatment for Mild-to-Moderate Ulcerative Colitis: A Discrete-Choice Experiment. Patient. 5(1):33-44 (2012)

 


Cost-effectiveness of adjunctive eptifibatide in patients undergoing coronary stenting in Germany.

Eur J Health Econ. 13(4):381-91 (2012)

 


Cost of hospitalization for cerebrovascular disorders in Belgium.

Acta Neurol Belg. 111(2):104-10. (2011)

 


Methylphenidate delivery mechanisms for the treatment of children with attention deficit hyperactivity disorder: heterogeneity in parent preferences.

Int J Technol Assess Health Care. 27(3):215-23. (2011)

 


Eliciting health state utilities from the general public for severe chronic pain.

Eur J Health Econ. 11(3):323-30. (2010)

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Cost-effectiveness of warfarin: Trial versus ‘real-life’ stroke prevention in atrial fibrillation.

Am Heart J. 157(6):1064-73 (2009)

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Eliciting patient preferences for hormonal therapy options in the treatment of metastatic prostate cancer.

Prostate Cancer Prostatic Dis. 11(2):153-9. (2008)

 


Preferences and utilities for the symptoms of moderate to severe allergic asthma.

Eur J Health Econ. 9(3):275-84 (2008)

 


The economic value of anti-IgE in severe persistent, IgE-mediated (allergic) asthma patients: adaptation of INNOVATE to Sweden.

Curr Med Res Opin. 22(9):1765-76. (2006)

 


Health state utilities for metastatic breast cancer.

Br J Cancer. 95(6):683-90. (2006)

 


Impact of omalizumab on quality-of-life outcomes in patients with moderate-to-severe allergic asthma.

Ann Allergy Asthma Immunol. 96(2):316-26. (2006)

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The cost-effectiveness of screening programs using single and multiple birth cohort simulations: a comparison using a model of cervical cancer.

Med Decis Making. 24(5):486-92. (2004)
 

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Continuous retrograde blood cardioplegia is associated with lower hospital mortality after heart valve surgery.

J Thorac Cardiovasc Surg. 125(1):121-5 (2003)

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